Innovative patient centered health care services - advantages of establishing a close CE network in celiac disease patient health care

Programme 2014 - 2020 INTERREG VB Central Europe

Date of latest update: 2023-11-15

Description

Description (EN):

Healthy and active aging is one of the greatest social challenges in EU facing longer life expectancy. Early prevention of chronic diseases that have severe impact on general well-being of patients is extremely important if we want to reach this goal and ensure sustainable health care systems in CE. Lack of development and promotion of innovative quality health services, disease management models and education have a profound negative effect. To tackle this challenge, this project will demonstrate development and pilot testing of innovative health service model in management of celiac disease (CD), by using CANVAS business model, aiming at improving knowledge, management and organizational capacities. CD is a model of a lifelong disease caused by ingestion of cereals. It affects 1-3% of population (up to 5 million in CE) of all ages. It is estimated that 80% of people having CD are un/misdiagnosed. Diagnostic delay remains 6-10 years. Undiagnosed/untreated CD leads to a number of severe (potentially preventable) complications: infertility, osteoporosis, neurological disorders, malignancies, etc, which have profound effect on quality of life. CE regions have different knowledge capacities and health care systems, which are insufficient and only partially address current problems. By transnational cooperation and analysis of differences in diagnostic approach, experts' knowledge and patient awareness and satisfaction and benchmarking of existing patient management models we will gain important data to develop e-learning tools for health care personnel and patients, to close the knowledge gap between stakeholders and to improve patient support. In each region an innovative pilot services will be tested, based on which an universal model will be designed including organizational improvements and implementation of best practices. This will enable us to develop a patient centered health care service, and thus ensure healthy and active aging of CD patients.

Achievements (EN):

Healthy and active aging is one of the greatest social challenges in EU facing longer life expectancy. Early prevention of chronic diseases that have severe impact on general well-being of patients is extremely important if we want to reach this goal and ensure sustainable health care systems in CE. Lack of development and promotion of innovative quality health services, disease management models and education have a profound negative effect. To tackle this challenge, this project demonstrated development and pilot testing of innovative health service model in management of celiac disease (CD), aiming at improving knowledge, management and organizational capacities. CD is model of a lifelong disease caused by ingestion of cereals. It affects 1-3% of population (up to 5 million in CE) of all ages. It is estimated that 80% of people having CD are un/misdiagnosed Diagnostic delay remains 6-10 years. Undiagnosed/untreated CD leads to a number of sever (potentially preventable) complications: infertility, osteoporosis, neurological disorders, malignancies, etc, which have profound effect on quality of life. CE regions have different knowledge capacities and health care systems, the Focus IN CD project improved the knowledge and addressed current problems. By transnational cooperation and analysis of differences in diagnostic approach, experts; knowledge and patient awareness and satisfaction and benchmarking of existing patient management models we gained important data to develop e-learning tools for health care personnel and patients, to close the knowledge gap between stakeholders and to improve patient support. In each region an innovative pilot services were tested, based on which a comprehensive celiac disease management model was designed including organizational improvements and implementation of best practices. This enabled us to develop a patient centered health care service, and thus ensure healthy and active aging of CD patients.

Website: https://programme2014-20.interreg-central.eu/Content.Node/home.html

Expected Results (EN): R 1.2 Status of capacities of the public and private sector for skills development of employees and entrepreneurial competences achieved through transnational cooperation driving economic and social innovation in central European regions.

Expected Outputs (EN):

To improve knowledge and skill capacities among health professionals, patients and other relevant stakeholders involved in management of celiac disease treatment in CE, with transfer of information and knowledge between participating regions, by unifying protocol and management solutions, development and use of common supporting e-service tools (3). To improve existing health management framework of CD treatment in CE, by establishment of comprehensive innovative patient focused management model, developed upon identified best knowledge practices, best developed and tested innovative e-service tools and pilot health care services. All together 10 new services will be developed and tested. To strengthen an innovative network and awareness raising among all CE in EU relevant stakeholders of celiac disease treatment and other chronic disease treatment and encourage the uptake of entrepreneurial competences by introducing and transfer of developed model beyond partnership and CE teritory on international events (6), meetings and trainings (6).

Thematic information

Health and social services Demographic change and immigration New products and services

Specific Objective: To improve skills and entrepreneurial competences for advancing economic and social innovation in central European regions

Thematic Objective: (01) strengthening research, technological development and innovation by:

Investment Priority:

(01b) promoting business investment in R&I, developing links and synergies between enterprises, research and development centres and the higher education sector, in particular promoting investment in product and service development, technology transfer, social innovation, eco-innovation, public service applications, demand stimulation, networking, clusters and open innovation through smart specialisation, and supporting technological and applied research, pilot lines, early product validation actions, advanced manufacturing capabilities and first production, in particular in key enabling technologies and diffusion of general purpose technologies

Partners (12)

Lead Partner: Mestna občina Maribor

Department: Project development office

Address: Ulica heroja Staneta 1, 2000 Maribor, Slovenia

Legal status: public

Website: http://www.maribor.si

Total budget: EUR 153 570.00

ERDF budget: EUR 130 534.50

Klinikum der Ludwig-Maximilians-Universität München

Name: Klinikum der Ludwig-Maximilians-Universität München

Department: Dr. von Hauner Children’s Hospital, Division of Paediatric Gastroenterology

Address: Lindwurmstraße 4, 80337 München, Germany

Legal status: public

Website: http://www.klinikum.uni-muenchen.de/

Total budget: EUR 265 084.00

ERDF budget: EUR 212 067.20

Istituto di Ricerca e Cura a Carattere Scientifico Materno Infantile “Burlo Garofolo”

Name: Istituto di Ricerca e Cura a Carattere Scientifico Materno Infantile “Burlo Garofolo”

Department: Pediatric Department

Address: Via dell’Istria 65/1, 34100 Trieste, Italy

Legal status: public

Website: http://www.burlo.trieste.it

Total budget: EUR 244 167.00

ERDF budget: EUR 195 333.60

Università degli Studi di Trieste

Name: Università degli Studi di Trieste

Department: Department of Life Sciences

Address: PIAZZALE EUROPA 1, 34100 TRIESTE, Italy

Legal status: public

Website: http://www.units.it

Total budget: EUR 232 485.00

ERDF budget: EUR 185 988.00

Univerzitetni klinični center Maribor

Name: Univerzitetni klinični center Maribor

Department: Department of pediatrics

Address: Ljubljanska ulica 5, 2000 Maribor, Slovenia

Legal status: public

Website: http://www.ukc-mb.si

Total budget: EUR 215 310.00

ERDF budget: EUR 183 013.50

Klinički bolnički centar Rijeka

Name: Klinički bolnički centar Rijeka

Department: Department of pediatrics

Address: Istarska 43, 51000 Rijeka, Croatia

Legal status: public

Website: http://www.kbc-rijeka.hr

Total budget: EUR 162 206.00

ERDF budget: EUR 137 875.10

Stiftung Kindergesundheit

Name: Stiftung Kindergesundheit

Department: c/o Dr. von Haunersches Kinderspital

Address: Lindwurmstrasse 4, 80337 München, Germany

Legal status: public

Website: http://www.kindergesundheit.de

Total budget: EUR 143 809.99

ERDF budget: EUR 115 047.99

Heim Pál Gyermekkórház

Name: Heim Pál Gyermekkórház

Department: Coeliac Disease Center

Address: Üllöi ut 86, 1089 Budapest, Hungary

Legal status: public

Website: http://Heimpalkorhaz.hu

Total budget: EUR 142 316.00

ERDF budget: EUR 120 968.60

E-Zavod - zavod za projektno svetovanje, raziskovanje in razvoj celovitih rešitev

Name: E-Zavod - zavod za projektno svetovanje, raziskovanje in razvoj celovitih rešitev

Address: Čučkova ulica 5, 2250 Ptuj, Slovenia

Legal status: public

Website: http://www.ezavod.si

Total budget: EUR 109 481.00

ERDF budget: EUR 93 058.85

Udruga oboljelih od celijakije Primorsko- goranske županije Rijeka

Name: Udruga oboljelih od celijakije Primorsko- goranske županije Rijeka

Address: Drage Gervaisa 52, 51000 Rijeka, Croatia

Legal status: public

Total budget: EUR 86 071.00

ERDF budget: EUR 73 160.35

Lisztérzékenyek Érdekképviseletének Országos Egyesülete

Name: Lisztérzékenyek Érdekképviseletének Országos Egyesülete

Address: Palanta utca 11, Budapest 1025.0, Hungary

Legal status: private

Website: http://www.liszterzekeny.hu

Total budget: EUR 85 502.00

ERDF budget: EUR 72 676.70

Primorsko - goranska županija

Name: Primorsko - goranska županija

Department: Upravni odjel za zdravstvo/Department for Health

Address: Slogin kula 2/l, 51000 Rijeka, Croatia

Legal status: public

Website: http://www.pgz.hr

Total budget: EUR 45 417.00

ERDF budget: EUR 38 604.45

Partners map

Partners and Projects info

Ludwig-Maximilian’s University Medical Center

Innovative patient centered health care services - advantages of establishing a close CE network in celiac disease patient health care

Partners and Projects info

Institute for Maternal and Child Health - IRCCS “Burlo Garofolo”

Innovative patient centered health care services - advantages of establishing a close CE network in celiac disease patient health care

Partners and Projects info

University of Trieste

Innovative patient centered health care services - advantages of establishing a close CE network in celiac disease patient health care

Partners and Projects info

University Medical Center Maribor

Innovative patient centered health care services - advantages of establishing a close CE network in celiac disease patient health care

Partners and Projects info

University hospital center Rijeka

Innovative patient centered health care services - advantages of establishing a close CE network in celiac disease patient health care

Partners and Projects info

Mestna občina

Innovative patient centered health care services - advantages of establishing a close CE network in celiac disease patient health care

Partners and Projects info

Child Health Foundation

Innovative patient centered health care services - advantages of establishing a close CE network in celiac disease patient health care

Partners and Projects info

Heim Pál Children’s Hospital

Innovative patient centered health care services - advantages of establishing a close CE network in celiac disease patient health care

Partners and Projects info

E-institute - Institute for Comprehensive Development Solutions

Innovative patient centered health care services - advantages of establishing a close CE network in celiac disease patient health care

Partners and Projects info

Association of celiac patients Primorsko - goranska County

Innovative patient centered health care services - advantages of establishing a close CE network in celiac disease patient health care

Partners and Projects info

Hungarian Coeliac Society

Innovative patient centered health care services - advantages of establishing a close CE network in celiac disease patient health care

Partners and Projects info

Primorje - Gorski Kotar County

Innovative patient centered health care services - advantages of establishing a close CE network in celiac disease patient health care

Lead partner

Project partner

Summary

Project name (EN): Innovative patient centered health care services - advantages of establishing a close CE network in celiac disease patient health care

Project acronym: Focus IN CD

Project start date: 2016-06-01

Project end date: 2019-05-31

Project status: closed

Total budget/expenditure: EUR 1 885 418.99

Total EU funding (amount): EUR 1 558 328.84

Total EU funding (co-financing rate): 82.50%

Co-financing sources:

ERDF: Amount, EUR 1 558 328.84.

Documents

Documents on this project are listed below, and organised by category. Please note field "Data source", attached to each document. Keep.eu users are free to use these documents as long as they mention the data source and keep.eu.

Reports

Detecting and managing CD patient within a 'cohort of super allergic population

Attachment type: file

Type of document: Report

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

Mentoring service for newly diagnosed patients

Attachment type: file

Type of document: Report

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-02-28

Languages: en

Attachment file: Download

Simulator testing to improve endoscopist practice in field of CD

Attachment type: file

Type of document: Report

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

Organization of knowledge transfer workshop with identified non partner regions

Attachment type: file

Type of document: Report

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en, de, cs, sk, it

Attachment file: Download

D.T3.2.4 Improvement of early diagnostics, testing method ́IGA T-TG deposits in tissue sample

Attachment type: file

Type of document: Report

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

Improvement of early diagnostics, testing method ́IGA T-TG deposits in tissue sample

Attachment type: file

Type of document: Report

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

D.T3.2.5 Improvement of diagnostics

Attachment type: file

Type of document: Report

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

Improvement of diagnostics, with testing 3 methods to improve CD practice

Attachment type: file

Type of document: Report

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

D.T3.2.7 Testing for celiac disease antibodies in school children

Attachment type: file

Type of document: Report

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

“ Improvement of diagnostic of atypical CD patients” PP7 IRCCS Burlo Garofolo

Attachment type: file

Type of document: Report

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

PP8 KUM - Implementation and testing of new service to improve transition from paediatric to adult health care

Attachment type: file

Type of document: Report

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-02-28

Languages: en

Attachment file: Download

D.T3.2.10 Implementation of Pilot Project “Evaluation and follow up of family members”

Attachment type: file

Type of document: Report

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

Testing of real life environment use of gluten free offer in restaurants

Attachment type: file

Type of document: Report

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

D.T3.2.12 Report about pilot project implementation

Attachment type: file

Type of document: Report

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

Transnational report about tested model in invloved regions

Attachment type: file

Type of document: Report

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

Project’s final reports

D.T3.2.2 Mentoring service for newly diagnosed patients - Final Report

Attachment type: file

Type of document: Project’s final report

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

D.T3.2.6 “Detecting and managing CD patient within a 'cohort of super allergic population” Pilot project Final Report

Attachment type: file

Type of document: Project’s final report

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

Pilot project Final Report

Attachment type: file

Type of document: Project’s final report

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2017-03-31

Languages: en

Attachment file: Download

D.T3.2.8 Improvement of diagnostic of atypical CD patients Pilot project Final Report

Attachment type: file

Type of document: Project’s final report

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

D.T3.2.9 Implementation and testing of new service to improve transition from paediatric to adult health care Pilot project Final Report

Attachment type: file

Type of document: Project’s final report

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

D.T3.2.11 Testing of real life environment use of gluten free offer in restaurants - Final Report

Attachment type: file

Type of document: Project’s final report

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

Brochures / magazines / manuals

Policy recommendation

Attachment type: file

Type of document: Brochure / magazine / manual

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

Focus on Coeliac Disease

Attachment type: file

Type of document: Brochure / magazine / manual

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

Living with Coeliac Disease

Attachment type: file

Type of document: Brochure / magazine / manual

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

O.T1.1 Assessment of celiac disease management practices

Attachment type: file

Type of document: Brochure / magazine / manual

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2017-05-31

Languages: en

Attachment file: Download

O.T2.1 E-learning tool for HCPs

Attachment type: file

Type of document: Brochure / magazine / manual

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

O.T2.2 E-learning tool for patients

Attachment type: file

Type of document: Brochure / magazine / manual

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

O.T2.3 ICT-App for HCPs

Attachment type: file

Type of document: Brochure / magazine / manual

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

O.T4.1 Policy recommendations

Attachment type: file

Type of document: Brochure / magazine / manual

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

Evaluation and follow up of family members

Attachment type: file

Type of document: Brochure / magazine / manual

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-24

Languages: en

Attachment file: Download

Studies / surveys

Diagnostic Delays in Children With Coeliac Disease in the Central European Region

Attachment type: file

Type of document: Study / survey

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-10-31

Languages: en

Attachment file: Download

Presentations

Idejna zasnova modela celostne obravnave bolnika s celiakijo

Attachment type: file

Type of document: Presentation

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2018-11-24

Languages: sl

Attachment file: Download

Focus IN CD – Innovative patient centered celiac disease management

Attachment type: file

Type of document: Presentation

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2018-11-24

Languages: en, sl

Attachment file: Download

Flyers

Varna priprava brezglutenskega obroka

Attachment type: file

Type of document: Flyer

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: sl

Attachment file: Download

Govoreča mačka in Lukčeva brezglutenska dieta

Attachment type: file

Type of document: Flyer

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: sl

Attachment file: Download

Online course for Physicians & Dietitians

Attachment type: file

Type of document: Flyer

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

Web-app for Pediatricians - Step by step guide to diagnose Celiac Disease

Attachment type: file

Type of document: Flyer

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-05-31

Languages: en

Attachment file: Download

Videos / films

Misija ENDOSKOPIJA

Attachment type: link

Type of document: Video / film

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-09-30

Languages: en, sl

Gluten-free kitchen

Attachment type: link

Type of document: Video / film

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2017-11-16

Languages: en

Celiakija - SLO

Attachment type: link

Type of document: Video / film

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-01-29

Languages: sl

What happens in the small intestine of someone with celiac disease

Attachment type: link

Type of document: Video / film

Data source: https://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

Publication date: 2022-09-14

Document date: 2019-02-04

Languages: en

Information regarding the data in keep.eu on the programme financing this project

Financing programme

2014 - 2020 INTERREG VB Central Europe

Last month that data in keep.eu was retrieved from the Programme's website or received from the Programme

2023-11-02

No. of projects in keep.eu / Total no. of projects (% of projects in keep.eu)

138 / 138 (100%)

No. of project partnerships in keep.eu / Total no. of project partnerships (% of project partnerships in keep.eu)

1 434 / 1 434 (100%)

Notes on the data

Information provided by the Programme. Achievements were retrieved by Interact from the Programme website (https://www.interreg-central.eu/), or a website directly linked from it, on 2021-09-20 and 2024-01-30.

The financial data featured in keep.eu for this programme, it's projects and its partners is not exact and should be taken as a reference only.

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Innovative patient centered health care services - advantages of establishing a close CE network in celiac disease patient health care

Description

Thematic information

Partners (12)

Partners map

Summary

Documents

Information regarding the data in keep.eu on the programme financing this project

Disclaimer